Recommended Links

NF Organizations

Neurofibromatosis, Inc. - A non-profit organization focused on finding the cure for NF by creating awareness and funding scientific research. The website for the Northeast area chapter can be found at NF Inc. Northeast.

The Children's Tumor Foundation - A non-profit foundation dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). Useful resource for additional information on neurofibromatosis and allied disorders.

Advocure - Advocure is a working advocacy group for the NF2 international community that is committed to ensuring the rapid translation of research knowledge into targeted therapy for the NF community. 

Educational Resources

Understanding NF1 - A medical resource about neurofibromatosis type 1 for parents, patients, and providers.

National Organization for Rare Disorders (NORD) - A non-profit, voluntary health agency that exists to serve rare-disease patients and their families. Provides an online database with up-to-date reports about rare diseases.

Research Funding

U.S. Department of Defense - Congressionally directed medical research programs. Focused on promoting research directed toward the understanding, diagnosis, and treatment of neurofibromatosis, as well as enhance the quality of life for persons with the disease.

National Institutes of Health (NIH) - Governmental agency under the U.S. Department of Health and Human Services. Offers information about health, grants & funding, scientific resources, news & events, and more health related topics and resources.