NF Organizations
Neurofibromatosis, Inc.

A non-profit organization whose mission is to create a network of support for those affected by NF, through education, advocacy, and coalitions, and by supporting research for treatments and a cure. In addition to the National NF Inc. site linked above, the website for the Northeast area chapter which helps to provide sustaining support for the activities of the CNfAD can be found at NF Inc. Northeast.

The Children's Tumor Foundation

A non-profit foundation whose principal focus is ending neurofibromatosis through the support of research. The Children’s Tumor Foundation (CTF) has provided research support to many individual laboratories in the CNfAD through their Young Investigator Award Program and 2 CNfAD sites (one NF1 and one NF2) participate in the CTF NF Preclinical Consortium

Advocure

Advocure is a working advocacy group for the NF2 international community that is committed to ensuring the rapid translation of research knowledge into targeted therapy for the NF community.

Educational Resources
Understanding NF1

A medical resource about neurofibromatosis type 1 for parents, patients, and providers.

National Organization for Rare Disorders (NORD)

A non-profit, voluntary health agency that exists to serve rare-disease patients and their families. Provides an online database with up-to-date reports about rare diseases.

Research Funding
U.S. Department of Defense

A congressionally directed medical research program is aimed at promoting research toward the understanding, diagnosis, and treatment of neurofibromatosis, as well as enhancing the quality of life for persons with the disease.

National Institutes of Health (NIH)

A governmental agency under the U.S. Department of Health and Human Services that offers information about health, grants & funding, scientific resources, news & events, and other health related topics and resources. The National Institute of Neurological Disorders and Stroke (NINDS) has an information page specifically concerning NF.

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