2008 Symposium Agenda and Faculty
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For more information, download the Center Brochure. Requires Adobe Acrobat Reader. |
Saturday May 17
8:15-9:00 AM Registration and Continental Breakfast
9:00-9:05 AM Welcome
James Gusella, PhD
9:05-9:35 AM Overview of NF1, NF2, and Schwannomatosis
Mira Irons, MD
9:35-10:20 AM Why We Do Research and Where We Are
James Gusella, PhD
10:20-10:35 AM BREAK
10:35-11:25 AM Clinical Trials & An Update on the DOD NF Consortium
Nicole Ullrich, MD, PhD
11:25-12:15 PM Capitalizing on Research Findings: A Specific Clinical Trial Example
Maria Acosta, MD
12:15-1:30 PM LUNCH
Hosted by Children’s Tumor Foundation
1:30-2:10 PM Breakout Session I
A. NF1 and Learning Disabilities
Maria Acosta, MD
-OR-
B. Reproductive Issues and Family Planning
Louise Wilkins-Haug, MD, PhD
2:15-2:55 PM Breakout Session II
C. Pain Management
Christine Sang, MD, MPH
-OR-
D. Sibling and Family Dynamics
Cori Liptak, PhD
Brian Delaney, PhD
2:55-3:10 PM BREAK
3:10-3:50 PM Breakout Session III
E. Implantable Hearing Devices and the MEEI ABI Program
Daniel J. Lee, MD, FACS
-OR-
F. Navigating the School System
Leslie Kim Cunningham, PhD
Lisa Northman, PhD
4:00 PM Wrap-up and evaluations
Mira Irons, MD
5:00-7:00 PM Informal Reception at Parris, Faneuil Hall Marketplace
Hosted by NF, Inc Northeast
Sunday, May 18
8:45-9:30 AM Continental Breakfast
9:30-9:35 AM Opening Remarks and Day’s Overview
Nicole Ullrich, MD, PhD
9:35-10:50 AM Breakout Session IV
G. Bench to Bedside: An NF1 Story
Cory Johannessen, PhD
Nicole Ullrich, MD, PhD
-OR-
H. Tour of Research Lab Stations
André Bernards, PhD
Emmanuelle di Tomaso, PhD
Marianne James, PhD
Cory Johannessen, PhD
Lee Kaplan, PhD
Andrea McClatchey, PhD
Vijaya Ramesh, PhD
Miriam Smith, PhD
James Walker, PhD
10:50-11:05 AM BREAK
11:05-12:20 PM Break-out Session V
I. Bench to Bedside: An NF2 Story
Andrea McClatchey, PhD
Scott R. Plotkin, MD, PhD
-OR-
J. Tour of Research Lab Stations
12:25 PM Wrap-up and evaluations
Scott R. Plotkin, MD, PhD
1:30-4:00 PM NF2 Adjunct Meeting
Symposium Faculty
Maria Acosta, MD--Assistant Professor, Department of Pediatrics, George Washington University; Co-Director NF Clinic, Children's National Medical Center
André Bernards, PhD--Associate Professor of Medicine, Harvard Medical School; Massachusetts General Hospital Cancer Center
Leslie Kim Cunningham, PhD--Clinical Psychologist, School Liaison program, Dana-Farber Cancer Institute
Brian Delaney, PsyD--Pediatric Psychosocial Unit, Dana Farber Cancer Institute
Emmanuelle di Tomaso, PhD--Instructor in Radiation Oncology, Harvard Meidcal School; Massachusetts General Hospital Cancer Center
James F. Gusella, PhD--Bullard Professor of Neurogenetics in the Department of Genetics, Harvard Medical School; Director, Center for Human Genetic Research, Massachusetts General Hospital
Mira B. Irons, MD--Assistant Professor, Harvard Medical School; Associate Chief, Division of Genetics, Children's Hospital Boston; Director Neurofibromatosis Clinic, Children's Hospital Boston
Marianne James, PhD--Instructor in Neurology, Harvard Medical School; Center for Human Genetics, Massachusetts General Hospital
Cory Johannessen, PhD--Genetics Division, Department of Medicine, Brigham and Women's Hospital
Lee Kaplan, PhD--Center for Human Genetic Research, Massachusetts General Hospital
Daniel J. Lee, MD, FACS--Chief of Otology and Neurotology in the Dept. of Otolaryngology, Medical Director of Pediatric and Adult Cochlear Implant Program, Co-Director for Skull Base Surgery, University of Massachusetts Memorial Medical Center; Principal Investigator and Research Associate, Eaton-Peabody Laboratory, Massachusetts Eye and Ear Infirmary; Department of Otology and Laryngology, Harvard Medical School
Cori Liptak, PhD--Pediatric Psychosocial Unit, Dana Farber Cancer Institute
Andrea McClatchey, PhD--Associate Professor of Pathology, Harvard Medical School; Cancer Center, Massachusetts General Hospital
Lisa Northman, PhD--Clinical Psychologist, School Liaison Program, Dana-Farber Cancer Institute
Scott R. Plotkin, MD, PhD--Instructor in Neurology, Harvard Medical School; Assistant in Neurology, Massachusetts General Hospital; Director NF Clinic, Massachusetts General Hospital
Vijaya Ramesh, PhD--Associate Professor of Neurology, Harvard Medical School; Center for Human Genetic Research, Massachusetts General Hospital
Christine N. Sang, MD, MPH--Director, Translational Pain Research, Brigham and Women's Hospital; Attending Anesthesiologist, Brigham and Women's Hospital and Children's Hospital Boston; Consultant, Dana Farber Cancer Institute and Spinal Cord Injury Unit, Veterans Administration Medical Center
Miriam Smith, PhD--Brain Tumor Research Center, Massachusetts General Hospital
Nicole Ullrich, MD, PhD--Assistant Professor of Neurology, Harvard Medical School; Director of Neuro-Oncology and Assistant in Neurology, Children's Hospital Boston; Director, NeuroOncology Multidisciplinary Neurofibromatosis Program, Children's Hospital Boston
James Walker, PhD--Research Fellow, Bernards Lab, Massachusetts General Hospital Cancer Center
Louise Wilkins-Haug, MD, PhD--Associate Professor in Obstetrics, Gynecology and Reproductive Biology, Harvard Medical School; Division Director, Maternal Fetal Medicine and Reproductive Genetics, Brigham and Women's Hospital
Questions? If you have any questions about the symposium or need assistance in planning your trip, please contact Melanie O'Leary, MS at 617-724-2365 or mcoleary@partners.org.
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